Version: 1.0.1 | Published: 4 May 2024 | Updated: 579 days ago

Anonymisation Standard for Publishing Health and Social Care Data

Dataset

Summary

Type:
Information standards
Effective From:
30 April 2013
Applies To:
  • Secretary of State (Department of Health)
  • The NHS Commissioning Board
  • Public bodies publishing information about provision of health/adult social care
Topics:
  • Information codes of practice
  • Information governance
Care Settings:
  • Community health
  • Dentistry
  • Hospital
  • Maternity
  • Mental health
  • Pharmacy
  • Transport / Infrastructure
  • Urgent and Emergency Care

Documentation

Description:

The law pulls in two opposite directions. Human Rights and Data Protection legislation, along with our domestic common law duty to respect confidentiality, require us to protect information that could identify an individual. The Freedom of Information Act requires public authorities to release information about their activities, and this message is reinforced by the government’s transparency agenda. Although the law makes a clear distinction between identifying and nonidentifying data, where that line should be drawn may be far from clear in practice. That is why this anonymisation standard for publishing health and social care data is needed. This process standard provides an agreed and standardised approach, grounded in the law, enabling organisations to:

  • Distinguish between identifying and non-identifying information
  • Deploy a standard approach and a set of standard tools to anonymise information to ensure that, as far as it is reasonably practicable to do so, information published does not identify individuals.

Relations:
  • Information Governance Framework (retired)
    Published as ISB1512 Amd 159/2010 Information Governance Framework.
  • Data Security and Protection Toolkit
  • Sensitive Data (deprecated)
    Published as ISB1572 Amd 97/2010 Sensitive Data.
Dependencies:
No known dependencies.

Document Control

Technical Committee:
Information Standards Board for Health and Social Care (ISB)
Mandated:
Yes
Status:
active

Legal Authorities

Legal Authority:
Section 250 of the Health and Social Care Act 2012
Legal Authority Description:
This information standard is published under section 250 of the Health and Social Care Act 2012